Learn together. Stay connected. Watch, listen, and take part.
Join our community events, watch past webinar recordings, and stay connected with the latest VWD education and advocacy. These sessions are designed to inform, support, and empower people affected by Von Willebrand Disease.
Stay connected with the latest VWD conversations
Our webinars are designed to help patients, families, and supporters better understand VWD, hear lived experience directly, and stay informed about important topics affecting the community.
Exciting Webinars Coming Soon
We’re preparing a series of new webinars designed to support, educate, and empower the VWD community. Check back soon for dates — you won’t want to miss what’s coming.
New educational sessions
We are developing fresh webinar topics focused on practical support, everyday challenges, patient voice, and improving understanding of VWD.
Watch for dates and announcements
As new sessions are confirmed, this page will be updated with event details so the community can register and take part.
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Follow us on YouTube and across our channels to be the first to hear about upcoming webinars, Q&As, and special community events.
Subscribe so you never miss a webinar, Q&A, or educational video
Our YouTube channel is the easiest way to stay informed about new sessions, community recordings, and future event announcements.
Subscribe on YouTube
Follow VWD Alliance on YouTube to keep up with webinars, recorded sessions, educational content, and future community updates.
Why this matters
Access to reliable, patient-friendly information can make a real difference. These sessions help bring together expert knowledge, lived experience, and a stronger sense of connection across the VWD community.
Why is VWD so undertreated vs. haemophilia?
Thank you to everyone who joined the first VWD Alliance live webinar. We were thrilled to welcome more than 50 participants from across the global VWD community. If you missed it, the key sessions and Q&A recordings are below.
Webinar Introduction and Agenda
Welcome to the first VWD Alliance webinar. This opening session introduces the themes of the event and sets the stage for the wider discussion.
What does the current VWD treatment landscape look like?
Cat WilderAn overview of current treatment options available for VWD patients and how the treatment landscape has evolved.
Haematologist Perspective: Why is VWD Undertreated vs. Haemophilia?
Dr. Catherine ReaA clinical perspective on treatment disparity, recognition, and why VWD remains undertreated compared with haemophilia.
Lived Experience: Prophylaxis Treatment for VWD
Emma BakerA personal perspective on prophylaxis treatment for VWD and how it has affected day-to-day life.
Q&A Session: Part 1
Answers to participant questions on treatment options, diagnosis challenges, and everyday life with VWD.
Q&A Session: Part 2
Continuation of the webinar Q&A covering further questions from the VWD community.
Join our growing community and stay informed.
Subscribe to our YouTube channel, watch past recordings, and keep checking back for new webinar dates. We’re building a stronger future for VWD through education, shared experience, and community connection.
