Learn together. Stay connected. Watch, listen, and take part.
Join our community events, watch past webinar recordings, and stay connected with the latest VWD education and advocacy. These sessions are designed to inform, support, and empower people affected by Von Willebrand Disease.
Stay connected with the latest VWD conversations
Our webinars are designed to help patients, families, and supporters better understand VWD, hear lived experience directly, and stay informed about important topics affecting the community.
Upcoming VWD Alliance Webinars
Browse upcoming webinars by territory. The UK schedule is shown first, and you can switch to view US webinar information using the toggle below.
Parenting a child with VWD
Practical guidance for parents and carers on navigating diagnosis, school, activities, confidence, and everyday life when supporting a child with VWD.
Gender Specific Health for Women
An important conversation focused on the impact of VWD on women’s health, including symptoms, diagnosis, treatment experiences, and daily wellbeing.
Gender Specific Health for Men
A dedicated session exploring men’s health in the context of VWD, including diagnosis, treatment, personal experiences, and questions from the community.
Receive Updates and Join the Community
Join our community to receive email updates about upcoming webinars, Q&As, and special VWD events. You can also follow us on YouTube and across our social media channels for recorded webinars and community updates.
Subscribe so you never miss a webinar, Q&A, or educational video
Never miss a webinar. Subscribe to the VWD Alliance YouTube channel for recordings, Q&As, nutrition videos, and new announcements as soon as they go live.
Subscribe on YouTube
Follow VWD Alliance on YouTube to keep up with webinars, recorded sessions, educational content, and future community updates.
Why this matters
Access to reliable, patient-friendly information can make a real difference. These sessions help bring together expert knowledge, lived experience, and a stronger sense of connection across the VWD community.
Watch the latest webinar content
Catch the webinar intro and the latest featured videos below, then explore the full library of past webinar recordings further down the page.
Webinar Intro
Start here with the VWD Alliance webinar intro video.
Featured YouTube Video
Watch this featured VWD Alliance video on YouTube.
Micros Bleeds are real! – Protect your joints & muscles
VWD AllianceKen Martin shares why micro bleeds matter and explains how protecting joints and muscles can help people living with VWD.
Misconceptions Vs Reality – Joint & Muscle bleeds
VWD AllianceA myth-versus-reality video that challenges common misconceptions about joint and muscle bleeds in VWD.
Why is VWD so undertreated vs. haemophilia?
Thank you to everyone who joined the first VWD Alliance live webinar. We were thrilled to welcome more than 50 participants from across the global VWD community. If you missed it, the key sessions and Q&A recordings are below.
Webinar Introduction and Agenda
Welcome to the first VWD Alliance webinar. This opening session introduces the themes of the event and sets the stage for the wider discussion.
What does the current VWD treatment landscape look like?
Cat WilderAn overview of current treatment options available for VWD patients and how the treatment landscape has evolved.
Haematologist Perspective: Why is VWD Undertreated vs. Haemophilia?
Dr. Catherine ReaA clinical perspective on treatment disparity, recognition, and why VWD remains undertreated compared with haemophilia.
Lived Experience: Prophylaxis Treatment for VWD
Emma BakerA personal perspective on prophylaxis treatment for VWD and how it has affected day-to-day life.
Q&A Session: Part 1
Answers to participant questions on treatment options, diagnosis challenges, and everyday life with VWD.
Q&A Session: Part 2
Continuation of the webinar Q&A covering further questions from the VWD community.
Join our growing community and stay informed.
Never miss a webinar. Subscribe to the VWD Alliance YouTube channel for recordings, Q&As, nutrition videos, and new announcements as soon as they go live.
