What is VWD Alliance?
VWD Aliance was established by a group of VWD patients out of a desire to raise awareness of Von Willebrand Disease (VWD). Every single one of us on the VWD Alliance team has had to explain to someone at some point in time, whether that be a family member or a healthcare professional, what VWD is and how it impacts us. In the 21st century, this should not be necessary, especially as VWD is the most common genetic bleeding disorder worldwide (yes, it’s even more common than Haemophilia). As a group, we decided that something had to change so that the next generation don’t have the same experiences, and so VWD Alliance was born.
VWD Alliance is a dedicated community for individuals and families living with VWD. Our mission is to raise awareness of VWD, provide support by bringing people together in the VWD community so that every voice is heard, and educate people on what it means to live with a VWD diagnosis.
The VWD Alliance was created by VWD patients for VWD patients. We want to support and empower people living with VWD by providing a platform for connection, education, and advocacy. By raising awareness of VWD, we hope to improve access to care, and ensure patients and their families have the tools they need to navigate life with VWD.
If you have any questions or would like to learn more about VWD Alliance, please don’t hesitate to reach out at hello@vwdalliance.org or message us on Instagram (@VWD_Alliance) or Facebook (@VWD Alliance).
Together we can create a brighter future for everyone affected by VWD.